First post since arriving back home!
The journey back home although long, was fine and uneventful. I can’t praise the airline and the respective airports enough, regarding the wheelchair assistance they provided to me during all parts of the journey.
Before departing for Mexico, I had made the decision that I would rely completely on the wheelchair while there, and would not even attempt to walk (furniture/wall surfing that I do back home). I felt this would be best for me, so as to give all my energy to the procedure and recovery process, and also to avoid any potential issues that may have been caused should I have fallen while trying to get about. I also thought it was best (for me), to refrain from exercising whilst there (this wasn’t as hard as I thought it may have been), solely to allow me to focus all my attention/energy on the procedure. In total, it has been around 7 weeks since I did any of my regular exercising, and I am really keen to get back in to it (some people who think they know me, may find that comment hard to believe). Now, I’m not talking serious heavy exercising here, I’m only talking about stretching and some light cardio work-outs, but anything is better than nothing. Doctor’s orders were to wait until a couple of weeks after returning home before starting back with the exercising, so I will try my best to hold off for another week (you will understand this more as you read on).
As I have stated before, I am not one to be open about my emotions or about how I am feeling (I have surprised myself with how much detail I have given so far), and to give a little insight in to how my mood may appear up and down from post-to-post, I will document any and all changes I experience from week to week. Now, I don’t envisage these changes (good or bad), to be long term or even permanent (however, if some of them are, I’ll gladly take them), ultimately all I want is to halt the progression I was having. So with that in mind, and to give a bit of context, if I can still feed myself in two years time, I’ll consider the procedure a success (any improvements are a bonus!).
Now on to changes I have noticed since returning home, they are in no particular order.
Whilst in Mexico I had no discomfort in my lower back, but this has returned within a day of returning home. In my mind, I’m putting this down to walking/gait issues, and the strain/effort I put myself through in getting about this way.
I have noticed a slight improvement in my hand dexterity and my ability to handle cutlery, and also a lessening of the numb sensation I had in my hands/arms.
I am now able to manage six to eight stairs before I start to drag my left foot up over the stair (except when I come out of the shower). Also, during those first steps, my left foot is landing flat and not ball-of-foot/toes first!
I am struggling to brush my teeth at night sometimes. This is a mixture of being able to stand up, and also to hold my arm at a high enough angle for brushing all area’s of my mouth ( this could be down to spasticity issues, resulting from my lack of exercising).
So, as you can probably imagine, based on these changes alone, psychologically, I’m a bit all over the place (but overall happy).
Now on to the hair loss issue. As I stated around day +10, I had started to lose hair. This was all from different area’s of my body, and only turned out to be a thinning of these area’s, and not total hair loss. Over the last week, I have lost around two thirds of the hair on my head, and anticipate it will all be gone by next weekend (hopefully, I enjoyed being bald before). I also have not needed to shave for over a week, this coming from a guy who normally gets a five-o’clock shadow everyday!
Finally, another note of thanks for all the well wishes and messages of support, that I have received from everyone. They mean a great deal to me!